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The following is a list of all instruments that have been approved by the
Scientific Advisory Committee of the Medical Outcomes Trust. Click
on the title of each instrument for a description and information about obtaining it. |
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Instruments are no longer distributed by the Medical Outcomes Trust. It
will be necessary for you to contact the original author or the source cited
in the information about each tool to determine where to obtain approval
for use of a particular tool.. |
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Generic Instruments |
| Condition-Specific Instruments |
For more
information, please go to
www.basissurvey.org
The Child
Health Questionnaire (CHQ) yields a 14-concept health status and well-being
concepts as well as reliable and valid summary (physical and psychosocial
health) scores. This instrument is comprised of scales specifically developed
for children and adolescents five years of age and older. The CHQ assesses
a child's physical, emotional, and social well-being from the perspective of a
parent or guardian (CHQ-PF50 and PF-28 (short form)) or, in some instances, the
child directly (CHQ-CF87, for children ten years of age and older). Areas
measured include: physical functioning, bodily pain or discomfort, general
health, change in health, limitations in schoolwork and activities with friends,
mental health, behavior, self-esteem, family cohesion, limitations in family
activities, emotional or time impact on the parent.
The CHQ has
been shown to be useful in comparing groups of children within HMOs, doctor's
offices, schools, including onsite clinics, clinical trials, and large
population based research efforts (e.g., Medicaid).
For more information, please go to www.qualitymetric.com or www.healthact.com
The
CHIP-AE is a generic self-report instrument to obtain reports from
adolescents (11-17 years old) about their own health. It was designed
to identify systematic differences in health from subpopulations of
adolescents, including the socioeconomically disadvantaged, and to assess
the impact of health services interventions on health status. It
includes six domains that provide a comprehensive picture of health.
They are satisfaction, achievement, disorders, risks, discomfort, and
resilience. It was designed to describe the health of groups of
adolescents and to evaluate changes in the health of groups of adolescents.
Each of the domains of health is amenable to health services intervention.
The computerized scoring program provides scores for the domains and the 20
sub-domains.
For more information, please go
to
www.childhealthprofile.org
Original Version Author: George Parkerson
The DUKE is a
17-item generic questionnaire that measures respondent-reported functional
health status and health-related quality of life during a one-week time period
for adults 18 years or older. It can be self-administered or
interviewer-administered usually in less than five minutes. Scoring for
the 11 scales of the DUKE can be done manually or by computer.
Six scales measure
functional health. They are physical, mental, social, general, perceived
health, and self-esteem. Five scales measure dysfunctional health.
They are anxiety, depression, anxiety-depression, pain, and disability.
The physical,
mental, social, and perceived health scales and the disability scale are
independent of each other in that none of their items are shared, whereas the
other scales have shared items.
For more information, please go to
http://healthmeasures.mc.duke.edu
Quality of Well-Being Scale (QWB)
Primary Care Assessment Survey (PCAS)
For more information, please go
to
http://160.109.101.132/icrhps/resprog/thi/pcas.asp
Original Version Author: John E. Ware, Jr.
The SF-12® is a multipurpose short-form (SF) generic measure of health status. It was developed to be a much shorter, yet valid, alternative to the SF-36® for use in large surveys of general and specific populations as well as large longitudinal studies of health outcomes. The 12 items in the SF-12® are a subset of those in the SF-36®; SF-12® includes one or two items from each of the eight health concepts. Thus, the SF-12® measures eight concepts commonly represented in widely used surveys: physical functioning, role limitations due to physical health problems, bodily pain, general health, vitality (energy/fatigue), social functioning, role limitations due to emotional problems and mental health (psychological distress and psychological well being). Both standard (4-week) and acute (1-week) recall versions are available.
The Medical Outcomes Trust (MOT), Health Assessment Lab (HAL) and QualityMetric Incorporated, co-copyright holders of all SF-36®, SF-12® and SF-8™ Health Surveys, have merged their licensing and user registration programs, with the objectives of simplifying licensing and user registration and better meeting the needs of the many new academic, commercial, and other licensees.
For more information, please go to www.qualitymetric.com
The SF-36® Health Survey is a 36-item instrument for measuring health
status and outcomes from the patient's point of view. Designed for use
in surveys of general and specific populations, health policy evaluations,
and clinical practice and research, the survey can be self administered by
people 14 years of age or older, or administered by trained interviewers
either in person or by telephone. The SF-36® Health Survey measures the following eight health concepts,
which are relevant across age, disease and treatment groups: physical
functioning, role limitations due to physical health problems, bodily pain,
general health, vitality (energy/fatigue), social functioning, role
limitations due to emotional problems and mental health (psychological
distress and psychological well being). Both standard (4-week) and acute
(1-week) recall versions are available. The surveys standardized scoring
system yields a profile of eight health scores and two summary measures and
a self-evaluated change in health status.
The
Medical Outcomes Trust (MOT) and QualityMetric Incorporated have merged
their licensing and user registration programs, with the objectives of
simplifying licensing and user registration and better meeting the needs of
the many new academic, commercial, and other licensees.
For more information, please go to www.qualitymetric.com
A 136-item self- or interviewer-administered, behaviorally-based, health status questionnaire. Everyday activities in 12 categories (sleep and rest, emotional behavior, body care and movement, home management, mobility, social interaction, ambulation, alertness behavior, communication, work, recreation and pastimes, and eating) are measured. Respondents endorse items that describe themselves and are related to their health. The SIP is scored according to the number and type of items endorsed. Scoring can be done at the level of categories and dimensions as well as at the total SIP level.
For more information, please e-mail Mapi Research Trust at trust@mapi.fr
Original Version Author: Elizabeth Juniper
This is a 32-item disease-specific instrument for adults with asthma. The aim of the AQLQ is to reflect areas of function important to adult asthmatics. Available in both interviewer-administered self-administered forms, the four domains measured by the AQLQ are activity limitations, emotional function, exposure to environmental stimuli, and symptoms.
For more information, please go to www.qoltech.co.uk
Original Version Author: Elizabeth Juniper
This is a 13-item disease-specific instrument designed to measure the impact of children's asthma on their primary caregiver's quality of life, specifically, how it measures normal daily activities and contributes to anxieties and fears. The two domains measured by the PAQLQ are activities and emotions.
For more information, please go to www.qoltech.co.uk
MOS-HIV Health Survey (MOS-HIV)
Original
Version Author: Albert Wu
The MOS-HIV is
a brief, comprehensive health status measure containing 35 questions that
measure 10 dimensions of health: general health perceptions, pain, physical
functioning, role functioning, social functioning, energy/fatigue, mental
health, health distress, cognitive function, and quality of life. A single item
is also included to assess health transition. Subscales of the MOS-HIV are
scored as summated rating scales on a 0 to 100 scale; higher scores indicate
better health. In addition to these subscales, two summary scores can be
generated: physical health summary and mental summary scores. The instrument
takes approximately five minutes to complete and can be self-administered.
Alternatively, it can be given as a face-to-fact or telephone interview.
Migraine Specific Quality of Life (MSQOL)
Original Version Author: Donald Patrick
The MSQOL is a 25-item self-administered instrument developed to measure long-term effects of migraine and migraine treatment on quality of life. Items are summed to provide an overall score and three sub-scores measuring physical, emotional, and social domains. A total MSQOL score can also be calculated.
This instrument has also been translated in several languages.
For more information, please go to www.seaqolgroup.org or e-mail seaqol@u.washington.edu
Original Version Author: Jackie Kwong
The MSQv.2.1 is a 14-item,
self-administered instrument covering areas of specific concern to persons with
migraine. Specifically, it addresses the three factors of role restrictive, role
preventive, and emotional function. It was developed from the MSQv.1.0; its
content was improved by rewording of different items for greater clarification
and it was shortened for easier administration. The MSQ v.2.1 is intended to
respond to a perceived need to develop a health status measure that would
adequately focus on the physical and emotional limitations which are typically
associated with migraine headaches. This instrument has also been translated in
a number of languages.
For more information, please e-mail M. Chris Runken at michael.c.runken@gsk.com
Original Version Author: Nancy C. Santanello
The 24-Hr-MQOLQ is a 15-item, self-administered questionnaire aimed at assessing the quality of life of migraine sufferers within a 24-hour period after having taken migraine medication and within the first 24 hours of a migraine attack. The items cover five domains, which are work, social, energy, vitality, feeling, concerns, and symptoms. The 24-Hr-MQOLQ is designed to assess the health of specific populations at a point in time.
For more information, please e-mail
Nancy Santanello (nancy_santanello@merck.com)
or Dawn Moyer (dawn_moyer@merck.com)
St. George's Respiratory Questionnaire- UK Parent Version (SGRQ-UK)
Original Version Author: Paul Jones
The St. George's Respiratory Questionnaire (SGRQ) is a disease-specific measure used to assess patients with mild to severe airway disease. Developed by Paul Jones at St. George's Hospital in London in 1990, this measure is a disease-specific instrument designed to measure impact on overall health, daily life, and perceived well-being. It was developed for use by patients with fixed and reversible airway obstruction. The measure consists of 50 (76 responses) items that produce three domain scores and one overall score measuring: Symptom (frequency and severity); Activity (activities that cause or are limited by breathlessness); and Impacts (social functioning, psychological disturbances resulting from airways disease). It is important to note that Section I (Symptoms) contains items on a five-point Likert scale; Sections II (Activity) and III (Impacts) are dichotomous (yes/no) items.
For more information, please go to www.healthstatus.sgul.ac.uk
Original Version Author: John Spertus
The SAQ is a 19-item,
self-administered questionnaire designed to measure functional status of
coronary artery patients. The questionnaire is composed of five scales to assess
clinically important dimensions of coronary artery disease: physical limitation,
angina stability, angina frequency, treatment satisfaction, and disease
perception. The SAQ has been demonstrated to be responsive to both major changes
in clinical status (i.e., improvement in angina-related problems as a result of
angioplasty) and smaller changes in angina-related functional status.
For more
information, please go to
www.cvoutcomes.org
Urinary Incontinence-Specific Quality of Life Instrument (I-QOL)
Original Version Authors: Donald L. Patrick, Mona Martin, Donald M. Bushnell
The I-QOL is a self-report instrument containing 22 items covering three domains of quality of life: avoidance and limiting behavior (8 items), psychosocial impacts (9 items) and social embarrassment (5 items). The I-QOL is intended to be a quality of life measure specific to persons with urinary incontinence and reflective of significant concerns related to urinary incontinence symptoms. Each item is rated from "extremely" to "not at all." Each domain can be scored separately, and a total score can also be calculated. Higher scores are better quality of life. The I-QOL is intended to be able to assess the health of specific populations at a point in time and to monitor health of specific populations over time. It is meant to be used in epidemiological investigations, clinical trials and program evaluations.
This instrument has also been translated into a number of languages.
Please visit www.seaqolgroup.org or e-mail seaqol@u.washington.edu for more information.
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